Useful websites and phone numbers
Carers found the following websites to contain useful information and details about the support available, and these are listed below:
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SWSH Cancer Network http://www.swshcn.nhs.uk/The network’s aim is to ensure all patients served by the network receive a uniformly high quality service, good access to services for all, best cure rates and a good quality of life. |
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Carers UK http://www.carersuk.org/Carers UK is the voice of carers and its aim is to fight for the rights of carers. They provide practical, financial and emotional support to carers and work to get recognition for the valuable work that carers do and to acknowledge their contribution to society. |
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Citizens Advice http://www.citizensadvice.org.uk/The Citizens Advice service helps people resolve their legal, money and other problems by providing free, independent and confidential advice, and by influencing policymakers. |
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Samantha Dickson Brain Tumour Trust http://www.braintumourtrust.co.uk/Samantha Dickson Brain Tumour Trust exists to find a cure for childhood and adult brain tumours through funding research. It also offers support, hope and information to patients and their carers. |
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The International Brain Tumour Alliance http://www.theibta.org/The International Brain Tumour Alliance (IBTA) offers support, advocacy and information to people with brain tumours and their carers in different countries. |
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Brain Tumour Action http://www.braintumouraction.org.uk/This group can provide help and support to those awaiting diagnosis, are caring for someone, or you’ve been touched in some way by brain tumours. Their Helpline number is 0845 4500 386 (10am – 1pm, Monday to Friday). They also have a free telephone support service known as Phone Pals. |
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Hammerout http://www.hammerout.co.ukHammerout is is a community site, which aims to help you learn more and get connected to other people with brain tumours and their carers in the South West. |
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Marie Curie Cancer Care http://www.mariecurie.org.uk/Marie Curie Nurses offer free help with caring for cancer patients in their own homes, in hospices and in day therapy centres. These services are available throughout the UK and are accessed through the District Nursing Service and GP’s and Consultant Medical Staff. Their freephone number is 0800 716 146. |
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Macmillan Cancer Support http://www.macmillan.org.uk/Macmillan Cancer Support help improve the lives of people affected by cancer. They provide practical, medical, emotional and financial support and campaign for better cancer care. Macmillan can be contacted for help and support on 0808 808 2020. |
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Brain Tumour UK http://www.braintumouruk.org.uk/Founded in 1997, Brain Tumour UK has an impressive track record of providing practical and emotional support to brain tumour patients and their families and has a national network of grassroots supporters. |
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Clinical Trials http://www.virtualtrials.com/Virtualtrials.com provides a tremendous range of information on the latest treatments and research into brain tumours, as well as a number of online support groups for patients and carers. The site is one of the most accessed brain tumour sites on the Internet and is used by people all over the world. |
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American Brain Tumor Association http://www.abta.org/The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. The ABTA has just produced an online handbook for caregivers of brain tumour patients. |
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Cancerbackup http://www.cancerbackup.org.uk/Cancerbackup is Europe’s leading cancer information charity, with over 4,500 pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers. They also have a freephone helpline: 0808 8001234. |
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The Brigitte Trust http://www.brigittetrust.org/The Brigitte Trust is an independent registered charity offering emotional support and practical help to people with life-threatening illness, and their families, so that they can remain at home for as long as possible. The Trust is based in Dorking, Surrey, and offers its free volunteer service within a wide radius of the town. |













